Dane’s heart of gold and his sister that saved his life

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By Phil de Lange


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Through our friends at Reach for A Dream, we met 8 year old Dane. He is a gentle, loving and selfless little boy with a heart of gold. He has a condition called adrenoleukodystrophy. Despite his challenges he’s always thinking about ways he can help others and make the world a better place. With all the time he’s spent in hospital, his family hasn’t had a chance to enjoy a getaway together in a long time, and he just wants to be with the people he loves most, making memories.

As Dane had treatment a lifesaving donation came from his little sister. It turns out that 4 year old Sophie was a 100% donor match for the treatment Dane needed.

Nikki Varden from The President Hotel heard about his story and was more than happy to help make Dane’s dream come true.

Our thanks to The President Hotel for getting on board to help Dane, Sophie, Chavonne, and Demetri. And a MASSIVE thank you to Reach for A Dream for the continued work that they do in making dreams happen for children with life threatening illnesses.

Phil de Lange
Phil de Lange
Phil de Lange is the producer of the Ryan O'Connor Breakfast show and has been with Smile 90.4FM since it's inception in 2013. Through his work on the breakfast show he has won two national radio awards. He has been in broadcasting for 15 years and has honed his talent at 6 different radio stations. Outside of radio he is also a podcast producer and award winning stand-up comedian.

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